“You handle the pain so well”… no, I don’t. I actually just hide it well 😞. My mouth burning 24/7 is a huge burden to bear #lupus #lupuswarrior🦋💜 #autoimmunedisease #sjogrens #burningmouthsyndrome

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One year of having a port placed for my Lupus infusions. One year ago on 8/25/25, I went to Interventional Radiology and had a power port placed for my infusions. My hematologist ordered it because my veins are difficult to get, and infiltrated on more than one occasion. #powerport #chemoport

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Five things I wish every doctor knew about chronic illness #chronicillness #autoimmunedisease #lupuswarrior🦋💜 #lupuswarrior #lupus

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Unfortunately this is so true for women with invisible illness. We have to *constantly* advocate for ourselves #lupus #lupuswarrior🦋💜 #autoimmunedisease #lupuswarrior

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When you missed your dance calling 😂 Hypermobility spectrum disorder checking in haha #hypermobility #hypermobile

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I made it through a yoga class this morning, and I’m so dang proud of myself! It took years to get to this point, and I definitely can’t do it every day, but today…today was a win #lupuswarrior #lupus #autoimmunedisease #lupuswarrior🦋💜

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#onthisday

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Collagenese silicone gel for the keloid over my port scar #portacath #port #collagen #scar #lupuswarrior

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My rheumatology appointment yesterday went far south. My heart was acting a fool yesterday #lupuswarrior #lupus #pots #potssyndrome

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Article that I wrote for the Lupus Foundation 💜💜 register to walk! You will not regret attending #lupus #lupuswarrior #autoimmunedisease @Jess | Lupus Life💜🦋 @mallysonwags @Brandon - Lupus SLE @Ashley Lou, RN, CRNI @lfaseregion

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It’s been a VERY medical week 😮‍💨 #autoimmunedisease #lupus #lupuswarrior🦋💜

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18 months of Benlysta 💜 #autoimmunedisease #lupus #lupuswarrior🦋💜 #benlysta

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Replying to @Missy Yes, I indeed pooped out a camera 😂. I had a capsule endoscopy (Pillcam) on Monday morning, and its journey ended on Wednesday morning #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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#onthisday exactly two years since I started hydroxychloroquine/plaquenil! I was officially diagnosed a month after this video.

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IYKYK. When symptoms are ruining your life, you’ll do anything to figure out what’s wrong. #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease #lupus

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The in’s and out’s of the pillcam (capsule endoscopy). Ask me anything! If it’s embarrassing, feel free to dm me. I’m an open book and nothing is too tmi for me to answer about it #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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Wait a minute 😭😭 I think I’m stuck in my bra for the night…noooo #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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Replying to @Bojanglesthesaddlehorse Why I’m doing the Pillcam (Capsule Endoscopy) #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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I have a camera inside of me 😂😮‍💨. I’m having a pillcamera (capsule endoscopy) done to check my small intestines for evidence of Crohn’s. #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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Pillcam coming soon! I’ll post a video afterwards! Hoping I can record it 🤞 #pillcam #capsuleendoscopy #autoimmunedisease #lupus

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Heather - Living with Lupus 🦋