Keep in mind that these symptoms are not only caused by POTS. They can be caused by a number of other things. ❤️‍🩹

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I don’t set any alarms. I can feel when I’m do for another bolus, and my body just wakes up on its own at night when my pain starts to kick in. I don’t ever want my pain to get really bad, so I trust my body and stay on top of the pain. ❤️‍🩹

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Can anyone relate? Lol. I love this meme… Everytime I do something, because I have hEDS (and company - all those comorbidities), I think about this meme. 😭

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HEDS is a complex condition that affects multiple systems throughout the body, because it is a connective tissue disorder. ❤️‍🩹

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I see you. ❤️‍🩹

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Yes, this video was inspired by that ignorant article. I made a video discussing the entire article, but TR won’t caption it for me. So, instead, I thought I’d break done how wrong that article is in separate videos. And remember, it’s ok to use mobility aids. ❤️‍🩹

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Pain management is life saving. ❤️‍🩹

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If your babies do this too, drop a photo in the comments, please. 😻 there may not be much room left for me, but I do sleep so much better when I’m surrounded by my kitties. ❤️‍🩹 they make me feel so safe.

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Who can relate? 😭 sadly, I didn’t find out I had hEDS until I was 32 years old. 🤪

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Can anyone relate? I’m so relieved to know that these things weren’t really from my chronic illness and chronic pain. ❤️‍🩹

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There clearly needs to be more done to protect disabled people from abuse. ❤️‍🩹

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I love my pain pump. It’s still working great. I will continue to keep you all updated on how things go. ❤️‍🩹

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I said different a lot. Sorry about that… also, I’m out of breath, because my POTS is flaring, and I’m due for some fluids. 😅❤️‍🩹

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How do you get ready for bed with your chronic pain? ❤️‍🩹

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Break the silence and end the violence. Love you all. ❤️‍🩹

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What’s your favorite way to stimulate your Vagus nerve? ❤️‍🩹 remember, this isn’t a cure. I recommend implementing as many POTS-relieving strategies as possible when living with POTS.

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Thank you all for the love and support. It means everything to me. ❤️‍🩹 I’m so grateful that I’m alive and that I survived.

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Have you ever been blown off by your doctors/healthcare professionals, because you ‘didn’t look like you were sick and/or in pain’? Drop your story in the comments. ❤️‍🩹

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I’m just so grateful that I’m out of that relationship and that I survived… ❤️‍🩹

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If anyone can offer me any help, I would greatly appreciate it. Thank you for letting me be vulnerable. ❤️‍🩹

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Allison Tennyson