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Epileptic seizures

After an epileptic attack.

It seems difficult to breathe.

Even if you increase the medicine or change the type, it will not go away.

It's hard to see.

I became epilepsy from the age of 5 and 4.

2025/6/7 Edited to

... Read more発作後の呼吸が苦しそうに見えると、こちらもパニックになりがちですが、私がまず意識しているのは「安全確保+時間を測る+呼吸の様子を観察する」の3つです。てんかん発作は経過(何分続いたか、どんな動きだったか)が受診時の重要情報になるので、スマホのタイマーで開始時刻を記録しています。 ■発作中に私がしている基本対応(家庭での対処) ・周りの危ない物をどかし、頭の下にタオルなどを入れてぶつけないようにする ・できれば横向き(回復体位)にして、よだれや吐いたものが詰まらないようにする ・口に物を入れない/無理に押さえつけない(ケガの原因になります) ・呼吸の音、唇の色(青紫っぽいか)、胸の上下をチェック ■「失神?痙攣?」で迷う時に見ているポイント 失神は一時的に倒れてすぐ戻ることもありますが、けいれんが左右対称に続く、目がうつろ、呼びかけに反応しない、終わったあと強い眠気が続くなどは、てんかん発作の可能性を考えて記録しています。発作後の強い眠気(ぼーっとする、寝続ける)はよくあると言われましたが、呼吸が不規則・顔色が悪い・いつもより戻りが遅い時は早めに相談しています。 ■発作で失禁があった時 恥ずかしさよりも皮膚トラブル予防が大事でした。落ち着いたら濡れた衣類を替え、可能ならぬるま湯でやさしく清拭して保湿。発作の種類の判断材料にもなるので「失禁の有無」もメモしています。 ■スピジア点鼻液(ミダゾラム)・ブコラムの“使い方”は事前確認が命 私が一番反省したのは「いざという時に手が震えて手順が飛ぶ」ことでした。処方されたら、医師・薬剤師さんに以下を必ず確認しています。 ・どのタイミングで使うか(例:何分以上続いたら/群発したら等) ・片鼻か両鼻か、投与量、追加投与の可否と間隔 ・使った後に救急要請する条件 ・保管方法と使用期限、持ち歩き方 実際は個別指示が最優先なので、メモを薬と一緒に保管すると安心でした。 ■救急受診(119)を迷わない目安(一般的) ・発作が長く続く(目安として5分以上)/何度も続く ・呼吸が明らかに苦しそう、唇が青い、意識が戻らない ・大きなケガ、頭を強く打った、溺れそうになった ・初めての発作、いつもと様子が違う 私は「いつもの発作と違う」と感じた時点で、受診先に電話して指示を仰ぐようにしています。 最後に、見ている側の心が削られるのも本当に現実で、辛さを抱え込まないでほしいです。発作動画や記録(頻度・時間・薬の変更・眠気の程度)があると診療が進みやすかったので、できる範囲で残すこともおすすめです。

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